-
Hello, and welcome to the Neuro
-
Critical Care Society podcast. I'm your
-
host, Nick Morris, and today I have a
-
very special guest, Dr. Mona Kumar.
-
Dr. Kumar is a full professor of
-
neurology, neurosurgery,
-
anesthesiology, and critical care,
-
vice chair of quality for the department
-
of neurology, director of the neuro ICU
-
at the hospital of the University of
-
Pennsylvania, departmental diversity
-
search advisor, co-chair of the Inside
-
Departmental Equity Committee and past
-
chair of the Penn Forum for Women
-
Faculty. She served on the NCS board of
-
directors and has previously served as
-
the board liaison to the inclusion and
-
neuro critical care committee. And
-
prior chair of the women in neuro
-
critical care committee, she has been a
-
lifelong proponent for advancing women's
-
careers of all stripes and has been a
-
huge influence and advocate for
-
inclusion in neuro critical care. And
-
that's what we're going to talk about
-
today. Dr. Kumara, welcome to the
-
podcast.
-
It's really amazing to be here. Well,
-
thanks so much for taking out time from
-
your day to do this. And you've taken
-
out a lot of time from your life really
-
to pursue this, but to me really seems
-
like a calming, in advancing diversity,
-
equity, and inclusion, particularly
-
within our field. Can you tell me,
-
where did this come from? When did you
-
get passionate about this?
-
So I think that I'm someone who's just
-
been passionate about sort of this work
-
for a long time I mean, even before I
-
came to medicine, I worked in homeless
-
shelters, domestic violence shelters.
-
I worked for at-risk youth around LGBTQ
-
issues and housing insecurity. And so
-
that's just sort of the person I want to
-
be and think that I am. I will say that
-
I think I got a little derailed when I
-
got into medicine, sort of felt like I
-
needed to walk that very narrow path of
-
academic medicine and didn't really.
-
I don't know, stay true to the person
-
that I was. And I think that as I've
-
advanced in my career, I felt a little
-
more agency in defining my life for
-
myself. I think it's sad that it took
-
sort of getting to the rank of professor
-
before I felt like I could do those
-
things. But I would actually say that
-
it was medical students who really sort
-
of helped me pivot into the space I had
-
the great fortune of facilitating a
-
doctoring course with first year med
-
students, and we actually followed the
-
cohort out to graduation that graduated
-
last year. And, you know, in sort of
-
really helping them, I understand their
-
own identities so that they could bring
-
their best selves to being doctors. I
-
realized I'd forgotten who I thought I
-
was And so it was because of that that I,
-
you know, sought the position to be the
-
chair of the Penn Forum for women
-
faculty. And after that it just sort of
-
snowballed into opportunities to really
-
just go where my passions truly lie.
-
Yeah, that's really cool. Can you tell
-
me around what year did that happen,
-
where you started to take on these roles?
-
It really was like 2018, I think before
-
sort of George Floyd and Arbery and some
-
of the kind of collective awareness as a
-
society. So, I think they graduated,
-
I think it's almost a year two now, and
-
then we started the first. So, yeah,
-
somewhere in that like 2018 time point
-
And one of the things I think that
-
really also kind of made me come to this,
-
I think, is one part of my job that I
-
really love is taking care of patients
-
and speaking to them and their families.
-
occurred to me one day that
-
I feel more of a bonus to take good care
-
of patients when there's another person
-
that I'm responsible to. So if there's
-
someone at the bedside and I know that
-
I'm gonna talk to them the next day, I
-
feel like I need to really be on top of
-
it and know all the details and do all
-
of those things. But then I realize
-
like, well, you don't have the
-
privilege or the luxury of having
-
someone at bedside every day when the
-
team comes and, you know, the teams
-
come some days, first thing in the
-
morning and sometimes later in the day,
-
then you might not get that sort of -
-
that onus from
-
the team to serve you and your patient
-
and your loved one as well. And that
-
really bothered me. And so I started to
-
think about, in my personal practice,
-
how can I follow up with families
-
personally and directly. even if they
-
can't be at bedside. And so I started
-
to adopt different practices and call
-
family members either before rounds or
-
after rounds. And I tried to make sure
-
that I speak to that person's designated
-
care provider or loved one directly
-
myself. And then I sort of started
-
thinking during COVID, like, could I
-
actually study this? Because in the
-
past, like, we don't really document a
-
lot about whether we're talking to
-
families and how we're talking to
-
families. But when COVID sort of
-
provided an opportunity where no one
-
could come in and we had to document
-
everything, you know, could we
-
actually look at how much time the
-
healthcare team spends with family
-
members? And can we think about how
-
many times we had a formal goals of care
-
conversation and how many times were we
-
reaching out were those conversations
-
and there was some attempt in my mind to
-
sort of answer this question that's sort
-
of been burning for me personally. And
-
so I'm still sort of in the midst of
-
that project and we're actually even
-
using natural language processing to
-
look at the content of those notes as
-
well to sort of see whether there are
-
different types of words being used when
-
we talk to families with maybe different
-
medical literacy or other biases that we
-
may have. Yeah, that's really
-
interesting and it strikes me it's sort
-
of in some ways a distillation of what
-
everyone in society needs which isn't
-
like an advocate at their bedside, like
-
we all need someone to help speak for us
-
when we can't speak and that's really
-
what you've been spending a lot of time
-
working on in the last few years, so
-
very neat I'm wondering, so
-
you had mentioned this kind of early
-
work you had done and then kind of
-
losing yourself in what I think what we
-
all do, which is this kind of external
-
expectation of what it means, maybe to
-
be an academic neuro intensivist and
-
then finding yourself around 2018. And
-
the cultural climate has been changing
-
rapidly. And maybe in 2018 into 2020,
-
this work in DEI was starting to get
-
appreciated and even popular and we're
-
seeing lots of papers and health care
-
disparities and people are starting to
-
move. What do we do beyond just
-
documenting disparities? And then all
-
of a sudden in the last few years, it
-
seems like this, this work is rapidly
-
losing popularity. In fact, it's even
-
at risk. I'm wondering if you can
-
comment a little bit on kind of how
-
you're feeling about now having taken on
-
this mantle. How are you responding to
-
this sort of climate change that we're
-
facing?
-
Yeah, that's a great question, Nick I
-
think that. on the one hand I think
-
that because there was so much energy
-
and enthusiasm around it, it gave voice
-
to a lot of people and there's a lot of
-
people in this space and that was great.
-
I mean, I really think that I haven't
-
seen that sort of collective attention
-
on a problem for a long time and so it
-
really felt like we were galvanized and
-
we were moving forward. And how quickly
-
it feels like the axis come down on
-
these efforts and how swiftly and how
-
fast and it's a very tough moment, you
-
know, I think that I'm really concerned
-
that A, the people who might not have
-
been in it for the right reasons, like
-
easily left, it's easier to leave the
-
effort now because there isn't the
-
support and there aren't the resources
-
and we have to take this work on again.
-
But the thing that I think a lot of
-
people found is that this is what makes
-
life worth living. and this is what
-
makes your academic work worth doing.
-
And so, you know, one of the things
-
that I think was pretty amazing for me
-
personally was really actually getting
-
involved. I know this could sound sort
-
of hokey in the shameless plug, but I
-
mean, finding like-minded people within
-
NCS really was sort of a safe haven.
-
And I think it was really, I think
-
that's actually what's keeping me doing
-
the work too, is just knowing that
-
there are amazing people doing amazing
-
work out there And even if I don't see
-
it in my local space, the fact that I
-
can actually keep in touch with it
-
across the country, across the country
-
internationally, it feels more doable
-
even in the setting that it's not
-
getting the support and it's being
-
actively sort of reversed. I feel like
-
I have a broader network now of people
-
who are like-minded and who really wanna
-
push this forward. But I also feel like
-
the stakes have never been higher.
-
never been more worthwhile to do this
-
work. And so, yeah, I think that
-
that's sort of where I'm at right now.
-
Yeah, and the stakes are high for our
-
patients too. What do we know about
-
disparities in healthcare and
-
particularly within neuro-critical care?
-
So,
-
you know, I think that it's interesting
-
to see the evolution. Like obviously,
-
there are a lot of disparities, you
-
know, even in the early 2000s, people
-
were talking about disparities and
-
outcomes in terms of, you know, who's
-
getting a cardiac cat, who's getting a
-
PCI, we know that gender disparities
-
occur and how do women present with
-
stroke or heart attacks versus how men
-
present. But there wasn't necessarily a
-
lot of action tied to the disparities,
-
it was like we recognized it and then
-
what?
-
You know, I think that, you know,
-
It's actually a little sad, like the
-
National Academy of Medicine in
-
2003 published unequal treatment and
-
recognized that there were inequities of
-
care. And so not only were these
-
inequities systemic, so like access to
-
care and things like that, but it was
-
actually even on the part of the
-
providers that we are in, that our
-
biases impacted how we delivered care
-
and that these were actually associated
-
with poor outcomes. In neurocritical
-
care specifically, I think that it's
-
really interesting to me to see - we
-
know that stroke outcomes differ by race.
-
Black Americans who have strokes nearly
-
have twice the mortality than white
-
Americans do. We know that in TBI
-
outcomes, the CDC has reported that
-
outcomes vary by race So if you're an
-
American Indian or Alaskan native, your
-
outcomes are - particularly worse after
-
a TBI. And that's from everything,
-
from acute treatment, to rehab, to
-
cognitive therapies after, which is
-
pretty demoralizing, I think. It's
-
really hard to recognize that.
-
And so I think, but like once it's
-
brought to your attention, then I think
-
you can make change. And so one of the
-
things that I'm feeling a little more
-
optimistically about is that obviously
-
an interesting observable hemorrhage,
-
there's a lot of effort now on new
-
treatments, and it's really sort of an
-
exciting time. But the AHE is also
-
recognizing that looking at race, the
-
way we've looked at race is not
-
necessarily the right way. We're using
-
a social construct to diagnose a genetic
-
and biological process, and those
-
things don't mesh. And so it may be
-
more important to think about the way
-
the JNC-8 taught me to treat
-
hypertension is actually antiquated and
-
old, and there's never been proof.
-
about how, you know, why we give or
-
why we used to treat hypertension with
-
certain medications for certain races,
-
that none of that was ever born in any
-
actual study, and it was all sort of
-
theorized, but not actually true, and
-
that there are now efforts to really say,
-
okay, well, let's look at the running
-
access, let's look at actually treating
-
patients
-
not according to race, but including
-
people from all racial categories into
-
research so that we can study this the
-
right way.
-
So I think that in my mind, like stroke
-
and TBI are probably some of the biggest
-
diseases that
-
we treat in neurocritical care, and I
-
think that they're easy starting places.
-
Absolutely. You mentioned these
-
inherent or implicit biases, right,
-
the kinds of biases that all of us have
-
that we have, even sometimes without
-
recognizing that we have them and that
-
affect our behavior. Elisa University
-
of Maryland where I work and I'm
-
guessing at University of Pennsylvania
-
where you work, this has come to light
-
and institutions are brought about a
-
series of implicit bias training courses.
-
Do we know how these courses actually
-
affect disparities? Are they improving
-
things?
-
To be honest, I don't know the data on
-
how well they're working or not working
-
I do think that it's offering a language
-
around recognition though. I think
-
self-reflection should be paired with a
-
debrief and review of action. One of
-
the things that we're doing at Penn that
-
I'm really excited about is
-
interdisciplinary simulation to really
-
talk through events as they happen so
-
that we can feel comfortable saying to
-
one another, Hey, I'm not sure that
-
that was was received in the way you
-
intended it. So really trying to think
-
through calling each other out when
-
there are issues that are coming up that
-
might indicate inherent bias or implicit
-
bias and creating an atmosphere in which
-
every member of the team feels like they
-
can offer their perspective and
-
viewpoint on how a patient interaction
-
goes I think we really have to leave
-
these hierarchical
-
paradigms aside and move towards the
-
collective because I love it when the
-
patient and their families really feel
-
that the med student understands their
-
needs because that means that we are
-
meeting that person's needs. That's all
-
that matters. And so making sure that
-
those types of things are incorporated
-
into the way we practice and deliver
-
medicine, I think, is critical. Yeah,
-
yeah, I love that. We do
-
interprofessional simulations as well.
-
we work a lot of our programs off the
-
HRQ's TeamSTEPPS program and recognizing
-
this need for kind of
-
stepping in when there's behavioral
-
malpractice, I call it non-punitive
-
ways to sort of check people and
-
recognize that this hierarchy, which is
-
built on not just what profession you
-
are, but there's all the other things
-
baked into that, right, which are
-
racial, sociocultural, and economic,
-
and historical, and that when we're
-
rude as the, you know, attending
-
physician to kind of, as we punch down
-
sometimes, or sometimes when we punch
-
up, if we will, that it's not just
-
what's happening between those two
-
individuals, but it's really
-
kind of representing some larger forces
-
at play that everyone kind of gets, and
-
then it has a much larger impact than we
-
think it does, doesn't it? Absolutely.
-
I think it sort of permits bad behavior.
-
It sort of extends bad behavior, and it
-
really limits voice. I mean, we were
-
talking before about using your voice to
-
make change, and it really quashes any
-
other types of voice, or I'm not going
-
to disagree, I'm not going to put
-
myself in that position. And so it
-
really squelches any different opinion
-
or viewpoint And I think up-standard
-
training is something that we should
-
really be focusing a lot more on. I
-
find it even very hard for myself to
-
call things out in the moment. And so,
-
but I'm becoming much more confident in
-
doing that. And I really think that
-
that actually is a skill that can be
-
imparted easily to everybody. And
-
that's why I love the team steps, and I
-
love, you know, giving everybody
-
language to say, Hold on. I'm not
-
comfortable. with this. So I'm
-
concerned about this. You know, I
-
think it really does help to sort of
-
pause, take a time out, and say, Let
-
me just make sure I understand this
-
right because I don't want this to
-
become the culture of our institution or
-
unit or our team. So
-
I think that that's it's critical.
-
That's great. I'm glad to hear you all
-
are incorporating that in your
-
institution too That speaks to my heart.
-
Maybe we
-
can kind of change stories. We'll do
-
another podcast on Simp. It's just
-
another way that we can use simulation,
-
that a lot of people don't really
-
consider.
-
But let's sort of move the focus back to
-
you gave this really wonderful keynote
-
speech at NCS last year that helped I
-
think a lot of people connect some dots
-
that maybe they hadn't connected before
-
in the way that really quite frankly
-
political action affects us at the
-
bedside in neurocritical care. And I'm
-
wondering maybe we can go through a few
-
of those political actions and talk
-
about kind of what their ramifications
-
are for us as neuro-intensivists. And,
-
you know, to take a role from our
-
trauma, or a line from our trauma
-
colleagues, you know, where is our
-
lane, right? That we've heard this,
-
you know, stay in your lanes type of
-
rhetoric. So, the first one you talked
-
about was really affirmative action, I
-
think. And the students for fair
-
admissions versus Harvard College and
-
UNC. And can you tell us a little bit
-
about, you know, some people might
-
think, well, that's for schools,
-
right? These are, we're under graduate
-
education. Why does this affect what I
-
do in terms of taking care of patients
-
in the neuro ICU?
-
Sure, so I think we have to start by
-
saying that diversity actually does
-
improve outcomes because if you don't
-
believe that, then it's not gonna make
-
sense I think, kind of how this is.
-
unfolding. But we actually know that
-
diversity improves healthcare outcomes.
-
It actually improves outcomes in nearly
-
everything. And that's really because
-
it minimizes groupthink. And so it
-
brings cognitive diversity to the table.
-
And so when you have cognitive diversity,
-
really you're opening up to more
-
possibilities and really can lead you
-
down the right road. And so it's been
-
shown in finance, it's been shown in
-
the lab, research labs, and it's been
-
shown in education that really health,
-
that diversity improves outcomes in
-
every discipline and medicine is no
-
different. We also know that
-
affirmative action improves diversity.
-
And we know this because different
-
states have actually had affirmative
-
action bans over the course of the last
-
couple decades And so, most notably,
-
California actually instituted a ban of
-
affirmative action. in 1996, and one
-
of the things that we can study is that
-
what happened before the ban and what
-
happened after the ban, and it was very
-
clear before the ban, there was a lot
-
more diversity, and not just diversity
-
of African Americans, but diversity
-
with Latinx
-
people, AIAN people, there was just a
-
lot more diversity across the board.
-
And then after the ban, within two
-
years, it was actually very quick, the
-
number of Latinx students in particular
-
dropped precipitously. It was like a 40
-
drop at the UC school. And they were
-
actually able to look at the cohort of
-
people who comprised that drop, and
-
like they could see like those patients,
-
who wouldn't have gone to this school,
-
they didn't get into UC Berkeley, they
-
didn't get into UCLA. So where did they
-
go and what did they do? And it's like
-
a pretty linear relationship between not
-
getting into those schools, getting,
-
you know, doing, like, having fewer
-
job opportunities. and not getting sort
-
of the long-term compensation that they
-
would have gotten and if they'd gotten
-
into these other schools. And so, I
-
think it's very clear to say that if you
-
don't get into one of those schools in
-
the undergraduate level, you're not
-
gonna get to the graduate level and then
-
you're not gonna get into these
-
competitive professional jobs. And so,
-
I think that's the relationship between
-
diversity and, eventually,
-
specifically medicine or medical school.
-
Now, in terms of what the cases were,
-
so the students for fair action versus
-
Harvard, which is a private college and
-
the same SFFA and UNC, which is a
-
public university, they took those
-
cases on at the same time because it
-
basically looked at undergraduate
-
admissions in those two areas. And what
-
they basically said was that that the
-
precedent that had been. that of
-
affirmative action was overruled. And
-
they said it's because in the case of
-
Harvard, Asian students were
-
discriminated against because they said
-
that even though they had higher test
-
scores and higher extracurricular
-
activities, they rated less as a group.
-
And so that was used as a stereotype,
-
which is part of the Equal Protection
-
Clause. It's not allowed to be used in
-
stereotype And then at UNC, they were
-
saying that it was about a white student
-
who didn't get into the undergraduate
-
class in 2014, that he had been
-
discriminated against because
-
students from underrepresented groups
-
had a higher standing in the admissions
-
process. And so those were the two
-
companion cases that overturned
-
affirmative action in the undergraduate
-
setting
-
Great, and so you. This obviously is a
-
threat, as you said, to enrollments in
-
professional schools and really who's
-
becoming a doctor and who's working at
-
the bedside. And what do we know about,
-
does it matter whether we have a diverse
-
workforce as physicians in the neuro ICU
-
and how well we represent our patients?
-
Yeah, it actually really does. And
-
there are data looking at if you have a
-
diverse physician work group. So for
-
example, there was a study done, I
-
just published last year, that looked
-
at the number of black family care
-
providers or family practitioners in
-
certain counties. And they looked at
-
from 2000, like just epochs and times.
-
So 2009, 2014, and like 2019. And
-
when they looked at the number of
-
providers over that time, they also
-
looked at life expectancy black people
-
in those counties. And just by having
-
providers in their counties that shared
-
their racial makeup, their life
-
expectancy went up. If you have the
-
state of Florida, look at nearly two
-
million births. And if the race of the
-
infant or the neonate was the same as
-
the race of the provider, their
-
mortality was halved. That's pretty
-
remarkable,
-
you know And I think if we all thought
-
to ourselves, like if we could see
-
ourselves in our patients, or if we
-
feel some kinship with their family,
-
some dynamic, I think we all know.
-
It's a human nature to sort of give a
-
little more and try a little harder.
-
And so whether that explains all of the
-
disparity, I don't think so. But I
-
definitely think that that's part of it
-
And so, you know, even West Point. in
-
terms of the military. They feel that
-
it's very important for the leadership
-
in the military to mirror the troops
-
because if you're gonna defend your
-
country, you need to know that
-
everybody has skin in the game. And so
-
I think it's really critical that that's
-
how health care is for sure. Yeah, and
-
yet recently we've had health
-
representatives who are really claiming
-
the opposite that patients are getting
-
inferior care because we have a more
-
diverse workforce who has quote unquote,
-
take an advantage of these affirmative
-
action rules to get to positions that
-
they don't belong and that's completely
-
against what all of the data really
-
support. But this is really a threat.
-
And maybe if you don't mind, could you
-
talk a little bit more about this
-
Educate Act and this idea you know,
-
medical schools are really being
-
compromised and maybe having to get rid
-
of their DEI offices or any other
-
similar type of equivalent. And this
-
seems to me to be one of the biggest
-
calls to action of our time, what are
-
your thoughts? I couldn't agree with
-
you more. And I'm outraged that even
-
the title of this act Educate Act stands
-
for embracing anti-discrimination,
-
unbiased curricula and advancing truth
-
in education, which to me is hypocrisy
-
at its finest. When the act is working
-
to dismantle EDI efforts in higher
-
education, it is outrageous. And it's,
-
I mean, it's just a shameless, I think
-
it's brilliant. Really subversive. You
-
know, to absolutely just and confuse
-
people And I think they really are
-
trying to sow confusion
-
people don't know what these things are
-
about. And so if the Educate Act was on
-
your ballot, you might think that
-
sounds like a good thing. And so, I
-
think subversive really is the term.
-
But, and I think they know it because
-
the evidence is clear, that diversity
-
in healthcare improves patient outcomes.
-
And so, I think this is just a naked
-
attempt to maintain the status quo, to
-
keep those in power. It's how people in
-
power keep power. And this is not
-
something new in our country. I mean,
-
we've been working to take money away
-
from people as they gain it
-
appropriately. We've worked to take
-
land away from African Americans. We've
-
worked systematically to decrease loans
-
for people who live in certain areas so
-
that they couldn't advance I mean, this
-
is just the. same in the present day.
-
What are some
-
pragmatic steps that maybe some of the
-
listeners can carry forward to try to
-
combat what's going on right now on this
-
front?
-
OK, Nicholas, why don't you ask the
-
hard question? That's why we invited
-
you.
-
You know, I think this is it. This is
-
like - this is the million dollar
-
question
-
Some considerations - I think you're
-
right. I mean, we have to actually
-
talk about what can we do? Because
-
what's the point of just lamenting the
-
situation we're in if we're not going to
-
take action?
-
So one of the things that we're doing at
-
Penn is we're not calling - we're not -
-
like our pathway programs aren't about
-
race. They're about distance traveled.
-
Did your parents go to college? If your
-
parents go to college and you're going
-
to be the first one to go to college -
-
hey, That's a huge accomplishment right
-
there. And so maybe using that as a
-
criteria, maybe using geography, what
-
is your zip code? Instead of favoring
-
the people who come from the zip codes
-
that have more resources, maybe you
-
look at applicants who come from zip
-
codes and it's not about race, it's
-
about zip codes. So I think some of
-
those things are really important. For
-
the listeners, I'm sorry, for the
-
listeners, you're referring basically
-
this idea of the area deprivation index
-
So we can, this is widely available
-
information that we can look up based on
-
zip code and see basically what are the
-
opportunities for people that live in
-
this area?
-
Absolutely, and it's actually, the ADI
-
is really, it's so granular, it gets
-
down to the US Census to find block. So
-
you can look at, because I know in
-
Philadelphia and I suspect in Baltimore,
-
one block this way, one block that way
-
and it can be a very different sort of
-
situation And so sometimes zip code is
-
too big. an area, but you can actually
-
use these area of the area deprivation
-
index that I think Dr. Amy Kind from
-
the University of Wisconsin actually
-
created a beautiful map and she has
-
actually color coded it to make it more
-
kind of visually clear that, you know,
-
these are the areas that have the
-
highest resource. And these are the
-
areas that have the lowest and they and
-
they take in information from everything
-
from schools to access to food and
-
groceries, you know, to parks and
-
things like that and really kind of come
-
up with an understanding of our country.
-
And you know, and what you can see is
-
that like on the coast, you know,
-
there, there's a lot more blue, which
-
is coded for higher, you know,
-
increased affluence and increased wealth,
-
not just monetary wealth, but resource
-
wealth. And then in more of the central
-
part of the country and in the south,
-
you see more of the crimson, which is,
-
you know, where there's fewer resources.
-
And coupled with this is access to
-
healthcare, right? I mean, we know
-
about the urban rural divide as well.
-
And so we're sort of depleted in certain
-
parts of our country and it's critically
-
important that we find a way using,
-
it's a little more creative than using
-
race, which is sort of an easy mark.
-
But to be honest, I think we have to
-
admit that sometimes race wasn't the
-
right measure. Sometimes if you're from
-
a high social and economic status and
-
you have a lot of resources, race might
-
not be the best marker, although
-
acknowledging that people - It's pretty
-
robust. It's pretty robust than even
-
people from, if your skin is black or
-
dark, even if
-
you have money in your pocket, not
-
protected from theills of racism. So I
-
think that one thing that we can do is
-
really to think differently for pathway
-
programs like how we can bring
-
the resources to people who could use
-
them most. I think it's important to
-
employ a holistic review, look at
-
people in the totality and not try to
-
strip them down to a couple of different
-
factors about themselves I think that
-
that doesn't tell the whole story.
-
Utilizing standard rubrics for
-
interviews and for
-
promotion and other leadership
-
opportunities, this is really critical
-
because this is where the implicit bias
-
comes in. This is the oh my gut
-
instinct is that that person is the
-
right person or the right fit when if
-
you look at them you know and see you
-
know well how many papers have they've
-
written or you know what are their
-
teaching scores or things like that you
-
can start to get a fuller picture and a
-
more equitable
-
assessment of each candidate against the
-
other, and then you can make a more
-
educated decision about who to choose
-
and how. I really worry about, we're
-
going through our fellowship applicants,
-
probably as you are right now. And when
-
we sit together as a group, and every
-
once in a while you hear the line, oh,
-
I think they'd fit in really well here.
-
I always, I used to say that. And now
-
it kind of makes this, the hair on my
-
back and the neck stand up, 'cause I'm
-
not sure what that means And to me, it
-
almost feels like a red flag that we're
-
going somewhere we shouldn't be going.
-
'Cause maybe, as you said, if
-
diversity really outcomes, maybe we
-
better leads to
-
don't want someone who fits in. Exactly.
-
I think who's gonna bring us something
-
new? Who's gonna bring us some
-
different way of looking at things that
-
might be the most innovative? I think
-
that fits. sort of thing, all it does
-
is just narrow your scope. It doesn't
-
broaden your horizons. And I think
-
that's really the most critical to
-
meeting our patients' needs, where they
-
are, meeting our trainees' needs to
-
where they are, meeting our staff's
-
needs, where they are. I mean, I
-
think so many things benefit from the
-
diversity that different perspectives
-
bring and different people bring.
-
I think the other things that we can do
-
is we can really work to retain our
-
faculty. So one of my kind of newer
-
roles is that I'm chairing a society for
-
clinician scientists at Penn, because
-
we learned that there's a lot of early
-
attrition of clinician scientists here.
-
And we're trying to figure out why that
-
is. And our vice dean for faculty has
-
really tried expertly to put numbers on
-
these things and to interview people and
-
figure out, you know. Why are you
-
leaving? Where are you going? Some
-
amount of attrition, you know, is good.
-
Hey, they're taking a better position
-
somewhere else because We've helped make
-
them successful But when they're leaving
-
within a year within a couple years, it
-
makes you think whoa Maybe we're not
-
meeting them where they are. Maybe they
-
think they're supposed to be doing
-
something even though they're meeting
-
their metrics Maybe someone's making
-
them feel that they don't belong and if
-
that's the case then we need to fix
-
those problems So that's sort of my new
-
passion project for right now And also,
-
you know, I think thinking about it's
-
not just So there's what are things that
-
you can do you can do term limits,
-
right? Like Has your division chief
-
been division chief for as long as you
-
can remember? Well, maybe we need to
-
change that maybe we need to give other
-
people opportunity to be in those
-
leadership roles to think differently
-
about leadership to change how it's done
-
and They have the skill set to then
-
continue to advance. I think, again,
-
it's one of those things where
-
leadership is sort of in the hands of a
-
few. We know this for gender, even
-
though more women make up med student
-
groups than men. When it comes to
-
leadership down the road, you don't see
-
as many women leaders in those same
-
roles and why, and the same thing goes
-
for URM on a much grander scale. So how
-
do we keep that from happening? Well,
-
things like term limits can actually
-
offer solutions that are practical and
-
pragmatic.
-
I also think about your research lab.
-
Diversifying your research lab might be
-
something that you can do on the local
-
level. Editorial boards, a lot of
-
editorial boards, they all look very
-
similar And so having more diverse
-
opinions and diverse voices might
-
actually allow for different types be
-
published with the same attention to
-
detail. And we'll put in the shameless
-
plug for NCS, but the more people that
-
come from that look different, that act
-
different, that think differently,
-
that join together in a medical society
-
can also change the tenor. And the
-
attention, right? I mean, medical
-
societies get to define what things they
-
take on in the same way, the people who
-
make those decisions. And that's
-
medical societies, national societies,
-
medical, your home institutions,
-
universities, all of those things, the
-
priorities get defined by the people in
-
charge. And if these are our priorities,
-
then we need to send to those ranks so
-
that we can be a part of making those
-
decisions. Well, you do have the hard
-
answers to hard questions, it turns out.
-
So I think those were, that's a whole
-
list of things that seem actually
-
achievable, although hard to do I would
-
also put in a plug for NCS. you know,
-
I'm always amazed how similar kind of
-
people look at NCS. And if people are
-
listening to this podcast who think
-
maybe I don't belong there, well, we
-
have a home for you. It's the inclusion
-
and neurocritical care committee in the
-
police section, and we welcome you.
-
All right. Let's, we're coming up on
-
time here, and I want to get to a
-
couple of other things. So we're going
-
to move on.
-
Your keynote, you also described this
-
really interesting connection, I
-
thought, between
-
Dobbsby Jackson and then ultimately the
-
UDDA revision and talking about brain
-
death. And again, this is something
-
where I think a lot of people had never
-
thought that these things in any way
-
could be connected, and yet you made
-
these connections. So what does one
-
have to do with the other?
-
This is just so excited for me. So
-
thank you for letting me talk about this
-
You know, I think at the heart of
-
Dobsby Jackson, the unspoken question
-
is, when does life begin? And so the
-
reason that many of the states are
-
choosing six week bands is because
-
that's the time at which the heartbeat
-
is observed in embryonic development.
-
And so if the heartbeat is what many
-
people are using to define life,
-
then the heartbeat may be what is used
-
to define death and as a
-
neuro-intensivist, that's not always
-
true. We had death by neurologic
-
criteria as defined by the UDDA. And
-
so it gives me pause, like what if we
-
can't do brain death determination
-
anymore?
-
What are the implications of that? So
-
one, I think that
-
it is a very confusing state for a lot
-
of people, and so if we lose the legal
-
ability to define death by neurologic
-
criteria, well. then we may be
-
increasing the number of patients in our
-
healthcare system who we would have
-
defined as debt. I mean, we don't have
-
medical treatments for and that we don't
-
think, you know, will improve.
-
And so that sort of takes that away.
-
And then also we do define brain death
-
and then they have, and patients or
-
families have the option to pursue organ
-
donation. And if we don't have brain
-
death and the number of organs goes down.
-
And so
-
last year there were 100, 000 people on
-
the transplant waiting list and 40, 000
-
organs were transplanted. So not
-
everybody who needed an organ got an
-
organ.
-
And that worries me There's already been
-
disparities. in the organ allocation
-
process, you know, how do you define
-
who needs an organ more than another
-
person, and some of those decisions
-
were sort of opaque to the public for a
-
long time, and there have been efforts
-
to really make that more equitable. But
-
again, that was an area where there was
-
significant and inherent inequity. It's
-
also, these diseases aren't equitable
-
You know, four times as many
-
African-Americans have kidney failure
-
than white Americans, but
-
more organs get transplanted for white
-
Americans than black Americans. So
-
right there, there's inequity. There's
-
also the type of organ transplanted.
-
More living donor organs go to white
-
Americans than black Americans. And so
-
why is that a problem? Well, the
-
outcomes are better for living organ
-
donors are living.
-
organs that were donated than from the
-
dead donors. And so, you know, that
-
keeps me up at night. That makes me
-
worry, like, how are we going to meet
-
the needs of patients who need organs
-
for transplantation if we lose the
-
definition of death by neurologic
-
criteria? And it actually, you know,
-
I think we've all recently, in recent
-
past, we know that there's a lot of
-
confusion in the lay press about, like,
-
what is brain death? And so with that
-
confusion, you know, normally you
-
would say, like, just take a timeout
-
and make sure everybody's on the same
-
page, but we really can't afford to do
-
that because people's lives are in the
-
balance. So how do we update the UDDA
-
in a seamless way? Well, you know, in
-
this current political moment,
-
it's proving to be too difficult the
-
United Law Commission or the ULC who
-
writes the UDDA. They're lawyers.
-
They're not doctors. They're informed
-
by a panel of colleagues of ours, among
-
others, but they're not doctors
-
themselves. And so I read in nature
-
last year, this was really concerning
-
that one of the commissioners of the ULC
-
was around in the 1980s when the UDDA
-
was first drafted. And he was a
-
proponent of death by neurologic
-
criteria. But now he's actually decided
-
that he's not. And he actually, his
-
day job is to work for a pro-life
-
organization in DC. And so I think he's
-
making the connections between, you
-
know, access to abortion and brain
-
death. And so, you know, that's very
-
worrisome. Yeah, well, thank you for
-
bringing that point forward. And I
-
think. I'm one of those people who
-
hadn't really considered this that
-
deeply, the connections between these
-
two issues, but I think you're right
-
that they're real, and we need to deal
-
with them. And
-
I'm also worried. You mentioned that
-
the UDDA revision is on pause or hiatus,
-
and I think Ariane Lewis has written
-
about this recently,
-
and the
-
most recent journal in neurocritical
-
care, and she talked a little bit about
-
how the first iteration really describes
-
the determination is left up to best
-
medical standards. And I think a lot of
-
us are worried, and I think she hinted
-
at it in her article that there's been a
-
politicization of what are medical
-
standards. And this is affecting
-
everything from brain death to gender
-
affirming care to a host of other
-
areas. And it's really, really
-
worrisome
-
I totally agree, and I think, you know,
-
even to continue this. the comparison
-
between access to abortion, which is
-
now, because there are no federal
-
protections, are defined by the states,
-
the UDDA is a federal protection, and,
-
but it's still defined locally by the
-
states, and that's what's causing a lot
-
of the confusion, because you can be
-
dead in one state and not dead in
-
another. And so, part of the reason
-
that we want the UDDA to be updated is
-
to give that federal level of
-
standardization that it can do. And yet,
-
we're seeing that play out with the
-
abortion debate and how you can't get an
-
abortion in one state, but you can get
-
an abortion in another state. It's
-
causing a lot of confusion among
-
providers who are at those state borders.
-
What can they do? And it's reducing
-
access for people even within a state
-
that's legal, because you get a lot
-
more getting patients from across the
-
border. And so, again, I feel like it
-
is so in discord among the populace.
-
And so everyone is confused. Nobody
-
knows what is right. Even like all the
-
well-meaning people are trying their
-
best, but you don't wanna be on the
-
wrong side of the law. No one is
-
advocating that, but that's happening.
-
So I know even for me, the Penn Forum
-
for women faculty, that is now a group
-
that is coming under fire because can
-
you just be for a gender? And so we
-
have to be thinking about these things.
-
And I know part of the reason I went
-
into medicine, I felt like it was a
-
straighter path and I'm pretty risk
-
averse. I don't like being in legal
-
jeopardy for doing my job. And talk
-
about moral distress and burnout, right?
-
Like I wanna do what's right for my
-
patients, but I can't because the
-
government won't let me. And, you know,
-
I think, I don't know if I ever told
-
you this, but, you know, I matched in
-
obstetrics. My intent was actually to
-
do this work with my life. And, you
-
know, I just fell in love with the
-
pesky brain. But, but, you know, I
-
think that I had never been put in a
-
professional capacity to think to myself,
-
like, do I do the work that I know is
-
right and to take the consequences,
-
whereas a lot of my OB colleagues have
-
been wrestling with that decision for a
-
long time.
-
But here, we absolutely are going to be
-
dealing with it. And, you know, I
-
think in my talk last summer, we had a
-
patient who came in, and I had to think
-
to myself, like, what do I do first?
-
I'm sure to mask you with 30 weeks
-
pregnant twin gestation, had a massive
-
cerebellar hemorrhage, you know, with,
-
I think, only a couple brainstem
-
reflexes, and, you know, it made us
-
all stop
-
Oh my God, how are we gonna manage
-
these situationsthat are very, very
-
complex? And that, to me, is a recipe
-
for increased moral distress and burnout.
-
When we can't do the things that we know
-
how to do because of systemic barriers,
-
that really, it's unacceptable and it
-
makes a lot of people wanna leave the
-
job they were called to do and that just
-
can't happen We can't let that happen.
-
I completely agree. We've covered a lot
-
of ground, I think. Yeah, I'm just
-
curious 'cause it has been a while since
-
your talk, which was last August and
-
the news cycle continues.
-
What else is keeping you up at night
-
these days? What else that we haven't
-
talked about, are you worried about or
-
should be on our radar?
-
I mean, I would say that the Educate
-
Act is one really. has me troubled. I
-
also, so I've had sort of the amazing
-
fortune of being able to give this talk
-
over the last year at about, I don't
-
know, eight or ten institutions. And
-
each time I give the talk, I add a
-
little something. And I was thinking
-
about how Claudia Golden, who is a
-
labor economist at Harvard, she won the
-
Nobel Prize. And then her work is
-
really about women and the work force.
-
And she credits the birth control pill
-
with really propelling women in the
-
workforce in a way that nothing else
-
could have done. And I can't help but
-
think to myself, like, well, if
-
access to abortion is restricted, these
-
issues with in vitro fertilization are
-
now being called into question, then
-
women are going to be able to plan their
-
careers.
-
their own time and that's going to take
-
women out of the workforce in
-
significant numbers. And we already
-
know that we don't have enough nurses,
-
we don't have enough advanced practice
-
providers, we don't have enough
-
physicians, 54 of whom in medical
-
school are women. What is this going to
-
do to health care and what are the
-
implications of that for, you know,
-
health care outcomes for all?
-
You know, I think we've talked about a
-
little bit about diversity and its
-
impact on health care. If we don't have
-
gender diversity either,
-
then I just, I think we won't be
-
meeting patients, you know, needs well
-
at all. And
-
I mean I could go on. I think there's
-
no money. And this is not even like
-
climate change
-
and, you know, affirming, you know,
-
gender affirming care. And I just, I
-
have so many personal, very deep-seated
-
feelings about a lot of these things.
-
And
-
I don't know how I can function through
-
a day without just outrage. I am going
-
to say that I do think that the newer
-
generation of physicians, nurses,
-
trainees, I think they do an amazing
-
job at really thinking critically about
-
this I think they value these
-
conversations. I think they're thinking
-
about things differently than we did. I
-
think they're questioning the status quo
-
more. So I have hope and I do have
-
faith. But I also think that like hope
-
and faith are not enough because they
-
are not active processes. We need to do.
-
I have to say if people hadn't heard
-
Alistair Martin's ink, you know, from
-
a couple years ago.
-
He's easily found on Instagram and all
-
sorts of places, but the impact of
-
voting on these specific issues cannot
-
be understated or overstated. It is
-
critically important that we recognize,
-
and even to this point of this educate,
-
if you go into the voting booth and you
-
don't know what you're voting on and you
-
see that, you might think to yourself,
-
oh, yeah, that's something I go for.
-
So being a concerned citizen who takes
-
their responsibilities, their civic
-
responsibility seriously, I think that
-
is really an important part.
-
And I think that I'm spending more of my
-
personal time figuring out how I can be
-
a responsible citizen in a way that I
-
just never have before And if you find
-
yourself in the Philadelphia airport.
-
at any time in the next year. Check out
-
this store called 1920s merch. I mean,
-
it is merchandising around, but it's
-
around the women's right to vote that
-
they got in 1920 and then outlines in a
-
pictorial form around the store the 50
-
years preceding a woman's right to vote.
-
And
-
for all the people who've said history
-
repeats itself, it really does. And I
-
think that there's a lot that we can
-
learn from history and
-
so I think just informing yourself is
-
arming yourself. And I think that
-
that's really where we need to go. Okay,
-
I love that. So let's end it there.
-
Thank you so much for joining us. I
-
learned a lot today and I learned so
-
much from your talk and I hope maybe
-
you'll come back on the podcast again in
-
the future to talk about some of the
-
many other things that keep you up at
-
night and keep all of us up at night and
-
raging through the day. If you all have
-
me, Nick, I'll come back for sure.
-
Yeah, I also just wanna thank you for
-
being a strong advocate for the
-
inclusion neurocritical care committee.
-
And before that, the women in
-
neurocritical care committee who I think
-
owe a lot to you and for representing
-
the larger group, both within our
-
society and beyond. So thanks so much.
-
Thank you, Nick, it's been a lot of
-
fun. All right, you have been
-
listening to the Neurocritical Care
-
Society podcast This podcast is
-
available anywhere you get your podcast.
-
Please like and subscribe. And
-
continuing education credits are
-
available for select episodes. Thanks
-
and check us out again.