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Hi, welcome back to the MCS podcast
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current series. This is Lauren Hoffman.
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I'm a neuro intensivist at Temple
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University in Philadelphia. And today
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I'd like to welcome onto the podcast.
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Someone that was previously featured in
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one of our stories of hope, Elizabeth,
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and we're actually fortunate to be
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joined by her sister Sarah, who's also
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a physician so we'll kind of get both
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sides of the story so thank you for
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joining us
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Thanks for having me. So before we kind
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of talk about what it was like kind of
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living through and recovering from the
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brain injury can you just talk to us a
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little bit Elizabeth about like what was
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your life like before it happened this
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is going back to 2013 2014 right yep so
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I was a I guess a senior in college and
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I kept very busy I was always working
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and I was a nanny and also at like
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another part time job was always busy
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and doing things so Um, I was very
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ready to graduate and start life after I
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was coming back to Philly and very
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excited to be reunited with my family
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after being six hours away in Boston for
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the past four years. So, um, yeah, I
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think that was pretty much everything
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leading up to it. And what happened
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when you sustained the brain injury
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actually was at the weekend that you
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guys were celebrating graduation Yeah,
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everyone had to come up for graduation
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and it was the night before my big
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ceremony. Yeah, I think it was after
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you had a couple graduations. It was
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the day of one of the graduations that
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you had, but not the basis for
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graduation. And then we went out that
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night before the major Boston University
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graduation Sorry, family was there. I
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think you're at a Red Sox game. And
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then that's kind of when things took a
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turn, right?
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Yeah, we have friends that helped us
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get these great seats up above the, was
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it about the great monster or? No, to
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the left of it, sort of a, yeah, kind
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of in the outfield, in this kind of
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open area. Okay, yeah. So it was like
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the third floor up and there were great
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seats where I'll have in such a great
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time and just really happy to be like
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reunited and it was really great But the
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game itself was kind of boring and
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some of my family members left, so we
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were waiting for the game to end, kind
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of, and we started gathering. As the
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game ended, we gathered by the
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elevators to head home and I was like
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very excited still, jumping on my dad's
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back, like playing around and I jumped
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on his back and as I came down, I hit
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the door and sorry, the door of the
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elevator And it kind of swung open like
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a doggy door. I slipped into the
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elevator shafts, following about 28
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feet. 20 or 30. Yeah, we don't know
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exactly for sure, but at least like 20
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to 30 feet, probably. Yeah, and I
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mean, at this point, I think, you
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know, we're gonna have to rely on Sarah
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for some of the following sequence of
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events, but it sounded like you had a
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pretty significant kind of polytrauma.
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You had several injuries. So on top of
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the brain injury, you had some other
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injuries. Could you just tell us a
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little bit about that, Sarah? Yeah, I
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think part of it too is, you know, she
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was in the elevator for at least like 30
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minutes as they were kind of on top of
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the elevator shaft. I guess I should
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say for about 30 minutes as they were
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securing the scene and trying to figure
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out how to get to her safely. And so we
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were really worried in that time sort of
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what her state was gonna be. And as
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like a first year medical student at the
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time, I was really anxious to like get
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to her and kind of see how she was doing.
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When she came out, she was definitely
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like moving her limbs. And I think was
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trying to like, they had a breathing
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mask on her. And I think they're trying
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to, you were trying to fight it, which
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is like definitely your fighting spirit.
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And then when we got to the emergency
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room and they started to assess you,
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they found out that you had bleeding
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into the brain. So both subarachnoid
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and, you know, in the brain tissue
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itself And they also described this sort
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of acceleration, deceleration injury
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where, because it's like, where you go
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really, really fast, really quickly.
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And then you stop all of a sudden,
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which is exactly what happened. And it
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kind of makes your brain kind of
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reverberate back and forth and causes
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this type of injury. And then you also
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had these sort of bilateral or both
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sides of the jaw, the mandible were
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fractured completely. Those had to be
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repaired. what took you back to surgery
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a few days later, they realized that
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you actually also had this cut that went
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from underneath your chin all the way
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through to the inside of your mouth as
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almost like something had been punctured.
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And so it was a lot of damage to the jaw
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and around that area, which is why we
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also got a breathing tube placed pretty
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early once they were able to get you out
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of the, you know, into infasafety And
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then some of the other things were some
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fractures to, you know, parts of the
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spine, the transverse processes of the
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spine. So you were in
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a back brace. And then they thought
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that you might've had a, you know,
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what's called a pneumothoraxo air around
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the lung that makes the lung collapse.
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So they did put in a chest tube to
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relieve that pressure. And then there's
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a lot of cuts and wounds where they had
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to do some stitches and teeth are pretty.
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Goody, goody, messed up too. Yeah,
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you had a lot of broken teeth.
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I mean, you're never what we knew. You
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had all those facial like injuries like
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seeing you now. I'm sure you had, you
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went through a lot of like extensive
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surgical repair for those injuries. And
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I mean, I'm assuming you don't remember
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any of the initial first few days in the
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ICU, is that right?
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No, I suffered from short-term memory
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for, I think it was almost three weeks
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until, and I think part of it was just
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the mundane, like same thing every day
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was difficult for me to like trace what
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was a memory and like what was just
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another day. So I had,
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I didn't remember the day before until
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like three weeks, like the second week
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of June, this happened May 15th, or
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May 18th? 16th, 16th. Yeah Have a May
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16th and
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then end. second week of June, I was
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finally like, Oh, yesterday, and
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referenced the day before, and everyone
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was kind of just stopped, and like,
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What, what did you say? So, yeah,
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yeah. So I guess we'll talk a little
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bit next about what it was like in rehab,
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but do you remember in the hospital,
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anything like, that really like made,
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was comforting for you, or anything
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that like the people that were taking
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care of you, like really did to like
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help keep your spirits up?
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I leave from hearsay from everyone else,
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but the nurses really took extra care of
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me and made sure to like brush out my
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hair every day and wash my hair.
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Typically you would just, they would
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just cut someone's hair off if it was as
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not it as mine was, but they really
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made sure to just take care of my hair
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as much as possible. And I don't know,
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I feel like everyone treated me like
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their daughter in a way They have just
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like a very kind. going towards me.
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And what was your perspective, Sarah?
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Did you feel like you were getting all
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that extra support from the staff as
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well? Like you and your family?
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Absolutely. I mean, we were there. We
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were there really around the clock. I
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mean, there's three sisters, you know,
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spouses, kids, my parents. So there
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was really someone there all the time.
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In the beginning, we tried to do shifts
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overnight and like stay with her. And
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the staff was like, we got this, you
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know, you got to go home and get rest
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and take care of yourselves. And it
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felt really good to know like, okay,
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she's in good hands. They've got her.
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And I think I remember Don from physical
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and I don't know, physical or
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occupational therapy, you know, they
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just took really good care of her. They
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did things that they thought she, you
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know, we're going to be helpful tools
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for her, you know, not just like what
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they would do for any patient.
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So definitely very cared for.
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And one thing that I thought was really
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interesting, you talked about in the
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stories of Hope Elizabeth, like they
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were like toddler face and like, can
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you like just describe, I'd like to
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hear like what you remember from it and
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then hear Sarah's perspective as to like
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what that was like seeing it firsthand.
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Personally, don't remember a ton from
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that either. I'm sorry, but I do
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remember seeing the tent that they had
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me in and I would not stay in the bed no
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matter what. I was just like trying to
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get up all the time. I like could not
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walk very well. It was just a bad sign.
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And every time I had a different nurse
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'cause they had someone sitting with me
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247, I didn't remember who they were.
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So I would just like, look at my mom or
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someone else in the room and be like,
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who is this person sitting here? Like,
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what is this? But that's really all
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that I can recall from that.
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sorry. I know. I mean, it, I think
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the way you described was like, you're
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kind of re relearning, like, how to do
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things and like process things. So like,
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what was that like for you, Sarah,
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seeing that? Yeah, I mean, I think,
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you know, we all watch the movies, you
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know, so just to, I guess, back up a
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sec. So Lizzie, they did put her into
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a medically induced coma, you know, in
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the beginning to kind of make sure she
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wasn't putting too much stress on her
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brain and to kind of figure out what the
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injury she was dealing with, you know,
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they did eventually take that off to try
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to see if she would wake up and it took
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a few day, you know, took longer than
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you might expect if you put like me at
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where I am right now under into a
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medically induced coma. And so I think
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we all watch these movies where someone
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comes out of a coma, you know, they
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back their eyes and they look around and
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then they're just like, oh, I'm,
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you're here and here we are. And we
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just kind of pick up from there. And.
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you know, it was definitely very
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different. And I kind of describe it as,
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you know, Lizzie went through like
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rebirth through all of the ages. And,
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you know, it was learning how to
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communicate, learning how to use your
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limbs, learning how to walk, learning,
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but also, you know, emotionally and
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mentally to go through all of those
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stages that we go through as kids. And
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it was kind of, it was kind of shocking
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to see and I think at some point, you
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worry,
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like, when is it going to stop? When
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are the improvements going to stop? Are
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we, is she going to keep going and
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continue to kind of get back to herself?
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Or is it going to stop at a certain
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level? And this will be this new
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version of Lizzie that we, you know,
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love, but will be different than, you
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know, what we know. And so I think
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that was hard to go through, but also a
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really good lesson as like, And, uh,
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you know, and. 'cause a med student,
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it was a first year med student really
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learning how different this could be
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and sort of how to help somebody going
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through something like that. And at
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that point, were they like cautiously
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optimistic or like what was like the
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team telling you guys in terms of like
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the trajectory for recovery?
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Yeah, I think they optimistic, but it
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was also like time. You just, you
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don't know, you know, we don't know
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You know, the swelling in your brain
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got better, the bleeding had stopped.
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So they didn't have to do more invasive
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procedures like relieve pressure or put
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in a monitor to monitor the pressure or
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anything like that, but I think it was
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just time. And, you know, I remember
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the first day that Lizzie kind of woke
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up and asked for me. Or, you know,
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she, I remember getting this text
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message Lizzie's asking for you, she
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wants to know where you are. And I
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remember like running to the hospital to
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be like, I just got to see her, you
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know, it was, that was such a special
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moment to like be like, you know, she
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knows who I am. And then that was once
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you had gotten out of the ICU. And then
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we gave her her computer back. And you
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know, she had had a trach placed
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because she, because of all the
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injuries when they did the surgery to
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repair her jaw, they didn't want to
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leave a breathing tube in. They wanted
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to put a trach in for safety. She also
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had a feeding tube place for nutrition.
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And so she couldn't really talk, but
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she started to, we gave her her
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computer and she started to like type.
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And would start to like type and
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communicate to us that way. And it was
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just so special to start to see, you
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know, see her come back slowly,
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just every moment, just appreciating
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just like you would a new kid, you know?
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Like celebrating every like little bit
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of improvement. Yeah. And Elizabeth,
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I guess when you end up transitioning
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from a hospital to rehab, I think does
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that kind of where you start to remember
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what was going on, or is it still a
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little foggy? It's a little foggy, but
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I think like two weeks into that because
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I was starting to do different
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activities and stuff, I was, they also
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like took me, started giving me
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signs of like, not I'm gonna say the
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outside world, but like my life before,
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and I was kind of recognizing that like,
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I don't know, I was like channeling
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another person that I used to be, and I
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could like kind of start coming out of
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it, but
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I definitely still found myself going
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through the ages, like throughout,
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even throughout the rest of the day.
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therapy. I was still like learning to
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walk again. And so, I don't know, I
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don't think it, I don't think I got to
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like fully back to who I was until I
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came home back at the end of June. What
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were some of the most challenging things
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that you can remember while in rehab,
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like either most frustrating or most
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challenging?
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I think my memory was a very, very
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challenging thing for me,
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just to like the little activities that
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I look back on now, and I'm like, Oh
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wow, that's so stupid, but like
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recognizing one person and seeing them
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on the page and their name and
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everything, they've taught me so many
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different skills and like how to
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remember people and how to pick out a
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sign, just different memory skills,
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and so now I kind of can do it a lot
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better, but I look back on that time
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and I'm like, How did I think that was
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so hard? The other thing was, I
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thought about this a lot. What other
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thing in therapy?
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I think the five motor skills was
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something that was very difficult even
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now. I don't have them all the way back.
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They're just like, I don't know, like
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I've lived on my eyesight, but like
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putting a pen in that cap lid, like the
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cap is still very difficult and things
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like that, so. And you mentioned your
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eyes because I think you had prisms made,
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right? You had some kind of visual
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issues after the injury. Yeah, in the
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lower quadrants, I have like double
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vision that has gotten a lot better or I
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have found a way to like look over it.
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And we didn't realize that until you got
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to, we didn't realize that until she
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got to the rehab and started to walk.
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And we were noticing that she was like
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closing one eye Or like, and you could
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see actually one of her eyes. It was
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like, wood divergent. Yeah, at a
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certain way that she was looking, one
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of the eyes would basically not be in
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line with the other eye, and that's
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when we realized, oh, this is probably
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making a lot of things challenging for
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her from this sort of nerve damage that
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I don't think has fully ever recovered,
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but you've definitely learned to
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compensate. And it sounds like you're
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really having to relearn everything What
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was keeping you motivated? It sounds
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like you had a lot of family support and
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a great rehab team. Are there any
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specific things you remember that really
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just kept you wanting to keep pushing?
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Family, like you said, were always
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pushing me and always like cheerleaders
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on that. I think it was just, I get
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like a mindset and I'm like, I'm gonna
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do this And I just like, we'll do
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anything I can to. to basically win. I
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make like a competition with myself and
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I'm like, okay, you're going to
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practice every day, you're going to do
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this. And that's like the what like
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determination and just like the repeat
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process of like practicing all of your
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rehabs really helped me. I didn't
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necessarily, I think definitely in the
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future, I was like, I need to get to
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Philly and just start my job, I need to
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move on with my life. You need to pass
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your CPA exams, which you did, and you
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were like, crazy determined to do that.
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Yeah, but I don't, I think I was just
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like, I need to get out of this
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hospital I, need to get my license back,
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I need to, I mean, that's certainly
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like, great motivation. Like, at what
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point do you start, you felt like, I
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feel like I myself again, like, how
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long do you think that took?
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Um,
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I would say
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close to probably like
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a year or two, like still questioning
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some things that I'm like, would this
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have been different if I didn't have an
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accident, but obviously that is a lot
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less now Um, significant for the rest,
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but I, um, I think for a year after
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the accident, I would ask you about all
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the time I was obsessed with asking
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people like, well, what I've done this
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if I was like, before the fall would
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pre fall is he I've done this like I had
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labels for pre and post fall and I was
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like obsessed with whether I was back to
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myself or not And it was really hard
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because I couldn't tell that myself. So
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I think that was the hardest part was
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just like, I don't know if I am or I'm
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not and I'm sure people I drove people
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nuts.
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What would you tell people that are
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going through a rehab process or trying
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to get back to feeling with themselves?
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What advice would you give them?
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Um.
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Okay. I would
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just tell them they have to like find
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the determination to keep trying and to
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not give up on like day after day, it's
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going to be hard to continue doing your
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therapies if you're not doing them well,
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but you have to practice and just keep
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trying because if you lose hope and
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faith, then it'll be a very difficult
-
journey to get back to where you were in
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terms of like finding like being able to
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recognize who you were, I think finding
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something you enjoyed to do before your
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accident and like re-finding that love
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for it really, really helped. And I
-
think you're referring to baking, is
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that right? Yeah. So for people, it's
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just a bit of a background, I actually
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connected with Elizabeth because I would
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go to her bakery in Philadelphia, and
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I'd. on social media issues doing a
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fundraiser for I think it was spalding
-
right or one of the brain foundation one
-
of their groups and and that's how I
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ended up learning more about what had
-
happened so when you started baking is
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that you think something that kept
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motivating you to kind of connect to
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your like pre like fall self absolutely
-
I think the in therapy that actually had
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a kitchen in my the rehab that I was in
-
and they took me into the rehab and they
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had me bake a batch of cookies and they
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didn't taste good but just like the act
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of doing it and getting back into that I
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think
-
the
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it was just like it made me kind of
-
realign with who I was and
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I think having something to always come
-
back to and baking is like a very unique
-
thing because you can just do that by
-
yourself and just like practice it and
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really like kind of bond with yourself.
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So it was really helpful to have that to
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do. So if you can ever, for the people
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that are recovering, if they can find
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something, a hobby that they had before,
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and maybe it would just help them align
-
with their previous self. That's great
-
advice. Sarah, is there anything you
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would share with like family members or
-
people that are like supporting a loved
-
one that's like kind of going through
-
this kind of situation?
-
Yeah, I mean, I think I would say you
-
have to be patient because it
-
is a long process and a long journey.
-
And I think you just wanna try to
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support the person in the best way you
-
can.
-
But I think I would also say, you know,
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as Lizzie was talking about it, I was
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hard to find out who she was, who this
-
person is now I think as, you know, a
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loved one, you're also. wondering who
-
this person, how far are they gonna be?
-
You want the best for them. You want
-
them to have and do whatever they want
-
to do. And, you know, I think
-
sometimes you can start to grieve, you
-
know, the loss of that person you knew
-
and then who they were to you. But you
-
also get to now meet this new person,
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exactly who they are and get to know
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them and
-
see them in a new light. And I think
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brain injury or not, anyone that goes
-
through that kind of trauma, you know,
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you come out, you're a different person.
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We all came out, different people going
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through that. And so I think just not
-
trying to force that person to be who
-
you think they were, but just embracing
-
everything that they are, the fact that
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they're still here with you.
-
all of these moments you get to just
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cherish from here on out with this new
-
perspective from what could have been so
-
different.
-
Thank you. I mean, I really appreciate
-
both you guys kind of sharing the story
-
and going into a little bit more details.
-
Any other final words you wanna share
-
with the listeners?
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No, I think that's it.
-
Anything else from you, Sarah?
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I mean, it was, it's important to look
-
back and think about these moments I
-
remember one time in the rehab when my
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mom and I were with her, we went down
-
to get lunch and we came back and Lizzie
-
had been circling the halls with her,
-
like one assistant and she said to us
-
like, Oh my God, I haven't seen you in
-
so long, like where have you been? And
-
with her memories, she thought we'd
-
been gone for like days And now.
-
you have these memories that stick in
-
your head of these, but now to see her,
-
this amazing woman who has accomplished
-
so much and has just put her heart into
-
everything she does. It's just really,
-
I'm so grateful and just blessed to have
-
her in my life. Oh, well, we really
-
appreciate you sharing and I hope other
-
people will read your story of hope.
-
We'll include a link in the show notes
-
and have the same patience that you guys
-
did So thanks for joining. We'll make
-
sure that link is included in the show
-
notes to check out this or other
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