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Hi and welcome back to the Ansi Us
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Podcast perspective Series, This is
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Lauren Kaufman and I'm a neuro
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intensivist at Temple University in
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Philadelphia today. I'd like to welcome
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onto the podcast authors from her
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current story of hope that was published
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in July twenty twenty three, as a bit
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of background, Ncs, current features
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the stories quarterly, and share
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stories of people that have a challenge.
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He stays in the array. See you today.
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I would like to welcome Dr. Pravin
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George and her attentive listener Nova
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in Fairfax, Virginia, and Sydney land
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us so welcome both of you to the podcast.
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Thanks for joining the for evidence,
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Though Sydney. Why don't I start with
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you before we kind of talk about how you
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ended up in the hospital and tell us
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what your life was like up until that
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moment. I think you twenty years old.
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You're a college student. Like Tell us
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how how life was before all this started
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before it all started. I was a typical
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college student. I was a sophomore in
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college, majoring in hospitality
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management and just. One to classes
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hanging out in my room mates. You don't
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make friends at a job. I was involved
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in different extracurriculars. I was in
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a sorority. I was in a sport management
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club Like different things like that. I
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was living basically a typical college
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life like lack of sleep. Lots of
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homework. Like just having fun and
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getting an education, and when you
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started having symptoms, What was it
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like? I think you are you a story?
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Talk about going to a clinic to get
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checked out Because you didn't think
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much of it is that. Right, Yeah, so I
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was everything was normal for a while.
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Then I started getting some really bad
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headaches, but I kind of just like like
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put off to stress dehydration. And lack
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of sleep things like that cause I was
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getting close to the end of us the
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spring term, so it was kind of like
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everything was piling up and stuff like
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that, so I didn't think anything of the
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headaches outside of anything crazily
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and then I had a couple headaches in a
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row for a couple of days, and then I
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had a good day where I felt nothing. I
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was great back to normal One about my
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life is all had been, and then the next
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day I woke up and I had thrown up that
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morning. So I called my mom, even
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though as a culture and I still call my
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mom and I asked her I was like. Hey.
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Like what do you think I should do like?
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I know I'm supposed to come home like
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tomorrow, But like do you think I
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should do anything and she recommended
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that I go to the health center at school.
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Just like to give it something like
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maybe the flu is going around or
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something like that, and so I went to
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the center the health center and they
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said like it's by a flu or some other
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viral infection of swords, so they sent
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me home with like an anti, nausea and a
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headache medicine, and nothing crazy,
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just thought it was something normal
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like a normal college sickness, so and
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then after that point what do you
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remember? I mean, I assume you don't
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remember ending up like. Do you
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remember the seizure? That is what kind
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of let up to everything or is it just
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kind of nothing, So my mom that day I
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took a nap after to the health center
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and I call my mom was like I don't
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really feel comfortable driving home
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Because it's right before Easter break,
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so I was. I called her. I said. Hey.
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Will you come get me and she said sure
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I'll come get you, so it's only an hour
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from my parents' house where I was going
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to school. You came and picked me up
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and took me home, and then that night I
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had started throwing up again, so had
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thrown up all night long, and I
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remember that like but some parts of
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that and like falling asleep on the
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bathroom floor and the next day my
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parents had to go to work because they
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weren't off that day and then my sister
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went to school because she was still in
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high school, so they will check them
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before they left for their day, and I
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remember them coming in and saying like
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hey, like call you anything. We're
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just minutes away from home. Low
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-income Get you or whatever into two.
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So what do all my life? I felt fine. I
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felt like asleep, and then the next
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thing I remember, I don't remember
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seizing, but the next that's the last
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thing I remember is throwing up and then
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my parents checking on me the next
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morning before they went to work, and
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before my sister went to school, and
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that's the last thing I remember until
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the end of the story. Okay, Wow, so I
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guess we will have hadn't come in, so
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this has gotten twenty seventeen year
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working at Cleveland Clinic. You're
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part of an array your team, So like
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what role did you play and taking care
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of Sydney the the night regarding City's
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care, I mean. It was actually from one
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of our residents who was that seeing the
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case unfold and he said You know. I
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think she may really benefit from being
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taken over to the Cleveland Clinic arm.
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I think her eyes if he is high, and I
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think that she actually has a treatable
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condition. It looks like she has a
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sinus venous thrombosis. I didn't have
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access to the images or anything, but
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give him the story that he gave in. We
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brought her over right away and we
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brought a writer away overlay, and by
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the morning it'll be noticed that she
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was in her shoes and a complete comatose
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state or Paris read the bedside, and
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you know they were. They were kind of
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devastated that momentum in seeing her
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breathing tube in, and just you know
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not looking so good, and I remember
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that night, calling R and a vascular
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team in and and the The evaluated the
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cave, and then. As early as I believe,
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eight and the next morning, and you
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know, they took her down for the
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endovascular procedure, trying to
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figure out all all of what was blocked
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off in her brain and they found does
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some very important veins that were just
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have obliterated by this clot, so they
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went to work right that morning, and
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and I, you know they, they were able
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to actually form a pathway through all
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of the veins, and they opened up the
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entire Ah sinus area that was clouded
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off, and at that point it was just
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giving her time, and she spent a lotta
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time in her eyes. You retain you lazing
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a lot of those vessels, getting a lot
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of our blood thinner medication, and
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I'm just having her parents and her her
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sister at bedside, and you know we got
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to know each other a lot just cramp or
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outright. With the underlying causes
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for this, Yeah, so we we did. We did
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a hypercar get work up, and you know
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has, as city knows that it seems like
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she has a a genetic factor that
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predisposed her to causing a clot a
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little bit there, so home we ended up
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having to start crying the long -term of
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blood thinning regimen, but you know
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she, she seemed to
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hold up to that side of the treatment
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plan.
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Her Her mind. Do you remember any of
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that current, or is it different than
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not? I don't. It's very weird. I
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don't remember much of it, but there
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are certain things that are strange that
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come to me like I remember certain songs
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playing like they trigger something like
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I remember a certain Harry another song
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after I left the like after I was
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healing about it. I was more like in
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tune with what's happening in the world.
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I remember hearing songs I'd like I'd
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asked the number. Was the song playing
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when I was in the? I see you are like?
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Why is the song giving like this weird
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like memory to me like that was
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happening, and then one of the nurses
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that I think was in the step down unit,
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Not the C you and I remember her and I
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asked her about her. I was like hey,
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Because she's actually from my hometown.
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I was like Hey was so and so's daughter
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my nurse, and she was like. Why do you
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remember that portion of the whole
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tenure? You're there use remove certain
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little random things, but I truly don't
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remember much else from that trip from
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that. Stay in the icy you stream. To
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be honest. It's probably your time.
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Your looks good. You don't remember
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that, and I guess I'm interested
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program. You know she isn't super long
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time. I think you guys ended up
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recommending a moving forward with a
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tray and peg placement Art. You know
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these difficult cases. Sometimes the
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team thinks you know what are we doing.
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Do We need to reconsider what we're
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doing. I know Sydney, Super young.
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Did you guys ever lose hope or was it
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always just you know, Push forward.
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Yeah, so certain points, you know. In
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a sitting there with her dad and her mom,
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it was it was you know a lot of those
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discussions, you know to be continued
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pressure. Because as we started getting
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to that three week point are a lot of
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people were saying you know, Should we
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consider the train and peg, I mean, at
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some point you know she's going to have
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to continue with from therapies and
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stuff like that, and that's when we
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didn't make the decision late, albeit
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to kind of go for a tracheostomy and I
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laugh at this because the day after she
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got the tracheostomy was the, she woke
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up, and you know she, she opened her
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eyes and then she was wide awake and
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she's like what's going on and and you
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know is so that it was a Quaker and go
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with the trick and I think she ended up
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going to the the acute rehab or the long
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-term acute care. And while she was
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there because she was so awake, I
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believe she pulled out her trick
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yesterday. Ah, but then she's like I
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don't need this anymore. Remember the
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last I remember not wholly, but like my
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dad. It's funny story because my dad
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was on duty that day because my parents
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would take chefs, because my sister was
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a senior in high school, so they also
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like to be a part of her life, too and
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not just worry about me, even though
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mine was a little more serious than hers
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at that point, but he was on duty that
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day and he turned around to grab a
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coloring book or something for me to do
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with him and I just turned back on. I
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had it in my hand and he was like. Oh
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God, this is not good, so we like
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scrambled to go get the nurse, and then
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she came in and tried to open the new
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trick and that's flew all over the place
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and it's just a story that my dad died
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laugh at to this day, but at that time
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it probably wasn't funny, but I still
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think it's funny, but
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I have some sense of humor about these
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things. Yeah, what do you think was
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the most challenging part of your
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recovery?
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That's a great question. I think, just
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the not being able to do everything I
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could do before I think it was like the
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mental adjustment like I could do
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everything on my own, and at that point
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I couldn't do everything on my own. So
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was the hardest part for me to be like I
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can't do this on my own, but it also
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haunt me realize like I have to dedicate
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my energies to therapy like physical
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speech. All of the things I had to do
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to get back to normal if I wanted to be
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back to normal again because it was such
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a challenge for me to be like I was a
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college kid. I was out on my own. I
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was out of my parents Also was living my
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life. Making my own decisions. Are my
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own thing on my own time, and at that
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point I couldn't like I couldn't
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physically do the things I was still
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doing, and mentally I was like still
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not one hundred percent there either,
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so it's kind of like I would say things
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I was like I dunno what you're saying
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and things like that so like frustrating,
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too for me, because I couldn't always
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articulate what I was trying to say Like
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On the first try, At least I would say
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something almost like. Do you mean this
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like Yeah. That's what I said Like No,
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you said this so just an adjustment
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period for me like physically and.
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Mentally to like dip pass that into a
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state where I could be on my own again
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and do things like I had been doing
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before, but it was a long journey, But
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for that journey, what is it that kept
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you motivated by country going, and you
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know kept pushing? Yeah, I think it
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was like the support system I had with
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like Dr. George and the nurses and the
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other doctors that were there, and then
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like my family being there all the way
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through and then all the other visitors
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I had from like my friends and other
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people in my life, just having them
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come in and like being so worried about
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me in a time that I don't remember any
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of it and then than just being like
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sober, leave to see me awake and like
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functioning and things like that that.
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It was like they went through this hard
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thing like I did to physically, but I
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don't remember any of it. They have to
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deal with all the memory of it, so I
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think for them I had to for myself, and
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for them I had to recover and get back
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to normal and let them see that I'm back
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to the Sydney I was before, and things
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like that, and what would you have any
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advice for other people that are kind of
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going through similar experiences,
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whether? If the people dealing with it
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or their family members and caregivers
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and the people dealing with it, I think
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it's as horrors of is to say to do after
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saying or what am I trying to say? It's
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easier to say than is her said than done,
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so I think you just have to find
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something whatever it is whether it be
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the people in your life. The career.
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You want to have the like you want to
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write a book like whatever you have to
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do to get you through. You have to
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target on something when you can narrow
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your focus that drives you to get up
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everyday and give therapy or give
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whatever your full one hundred per cent
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because I think that was what for me is
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like I am as a sophomore in college,
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Like I want to get a degree. I want to
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have a job. I went to a family. I want
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to live this life that I was always
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dreamed of my whole life. Like I have
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to get to that point. So I was like I'm
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not my life's an ending or stopping here.
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Like I have to push through to see the
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end of it like to see it through and
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then for the people that are surrounding
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the supporters and the surrounding folks
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in those people's lives just be patient.
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But also be strong willed, and the fact
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that your strength helps more than they
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realize, like everyone says that, but
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truthfully having people strong people
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around you to support you and love you,
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and just to be there to help you do the
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things that you used to do on your own
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that they can help you do things like
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eating going to the bathroom like
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reading your name things like that like
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it's better to have the support system
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and the support system goes a long way.
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So be that support system in whatever
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way works for the individual. Whether
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it be going to see them talking to them,
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treat them like normal. Like whatever
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it is like for me, I didn't want to be
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like the patient, and like everyone was
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focused on me and things like that like
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I just wanna live a normal life, but
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like recover, so it was kind of hard
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for everyone involved myself included
-
like I don't need your help. I don't
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need this, but I did, but then my
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mom's side to urban parents and
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everyone's support side of it too was
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like we just want to help you buy, like
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you not wanting your help is frustrating,
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so like you to find that safe space and
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that ground that you guys can find
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together that works well for. Moving
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forward and is there anything you wish
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like the the care team like her dining,
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and it's probably talk, Cause you don't
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remember much, but I guess for us as
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like people that take care of patients.
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Like what can we do to like Help people
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get through this. I think it's just
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staying positive and I know it's hard
-
cause like medical professionals want to
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stay the truth and things like that,
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but I think at some point there has to
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be a point where you can read the people
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that you're telling the news, too, and
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how to tell it to lead us. I think my
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mom from her experience like someone in
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there was like well. We don't know
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what's going to happen. Where like Dr.
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George would come in and say we have
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confidence Alex. She is. It's gonna
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work out like we're going to figure
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everything we can do to help her get to
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wherever she can get like saying in a
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positive and encouraging way without
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saying like she's gonna wake up.
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Everything's gonna be fine. But like
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we're doing everything we can do to get
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her to wherever she can get, rather
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than mean. Like we don't know she could
-
be normal again. She could be back to
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like it, just having that positivity in
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the the new sharing and the. Also, I
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think for my dad personally, it was
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like having all the information 'cause
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he's definitely like a knowledge-based
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person where he wanted to know
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everything. So he would stay late at
-
night with Dr. George and ask him, I'm
-
sure way too many questions. So I'm
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gonna apologize in advance to my father
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for that, Dr. George. But he always
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wants to know everything from A to Z
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about everything. So I'm sure for him,
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like it's about reading the people
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'cause I nominated the positivity and my
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dad needed the questions answered. So
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it's kind of about finding that ground
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with the patient and the caregivers and
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the lovers and the family around them
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that you can kind of feel what works
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best for them and what's gonna help them
-
along the journey. Yeah, I mean, that
-
can be a hard balance to find where you,
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like, at least for me, I want to be
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honest and communicate what's going on,
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but you still do, you know, like you
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said, being positive, you know. Yeah.
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So I think it's something we all have
-
room to work on. Yeah, and I think
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it's easier said than done too, 'cause
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like I'm not a medical professional, so
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I know sometimes you have to tell the
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hard truth and that's just how it is
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sometimes, so. Now, a more positive
-
way to end the story is, I think you
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returned to college of less than a year
-
after this all happened. Were you back
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to your normal self? Or like were you
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still kind of working on things?
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Both. So I went back to school, but I
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had signed through my outpatient therapy.
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We had talked about how I could go back
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to school and how things would work for
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me. So I had worked with the department
-
at school that gave extended time and
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things like that. So I talked to them
-
and I got extended time for the first
-
semester back just to take tests and
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things like that 'cause we didn't know.
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Like I hadn't been in a class. Like I
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did great with speech therapy and things
-
like that, but I hadn't been back in a
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classroom since pre-stroke. So we're
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like, they were like, We don't know
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how you're gonna absorb information,
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how you're gonna take tests and things
-
like that. So they wrote me notes and
-
things like that. So I got extended
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time and all my faculty knew about the
-
story and everything like that 'cause I
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went to a smaller university And then
-
there was just helpful to me to have
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that opportunity, but I really only use
-
it. I think the fall semester when I
-
went back, I might have used in the
-
spring, too, But I'm not positive.
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And then what are you up to now? I mean
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there were several years later which are
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lifelike. I now live in Buffalo, New
-
York, So I moved away from Ohio. I'm
-
working at the University of Buffalo
-
here and doing something a little
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different than where I thought maker
-
would go, but still some parts of it
-
are still there, and during a small bit
-
of events, but I'm also doing more and
-
higher Ed things now I dunno what I'm
-
trying to say, But yeah, I live here
-
for hours my parents, so it's been an
-
adjustment there too Cause my mom still
-
worries about me every day, so they
-
call her and she's like. Oh you have a
-
sniffle. Are you okay and I'm like just
-
a cold. So are you sure you want me to
-
come up there and like nope, I'm good.
-
I'll call you if I need you and everyone
-
in my life knows that too like my mom is
-
very worrisome and she's still. I don't
-
think she's Really fully process the
-
whole thing yet still to this day, I
-
don't know if she ever well truthfully,
-
but like I joke about it and it's fun.
-
It's not funny to me, but like I had to
-
make joke of it in light of it now
-
Because of like I'm doing, I'm living a
-
life I always thought I would and I'm
-
healthy and everything's going well in
-
my life currently, so I just like you
-
can spend life and always in the
-
seriousness and everything like it
-
happened. We're moving past that were
-
good, but already, and when I really
-
want to hear, as you know, this
-
happened five years ago, and you, an
-
province were able to reconnect or I
-
think he reached out to you, cause I,
-
you know I'm always asking my friends
-
for stories of hall, and he's like I
-
got one and it. He put us together. Ah,
-
But you know years had passed, so how
-
did you guys stay in touch?
-
I just think that Dr. George played
-
such a big part in our family's lives
-
that we just continue to like chicken
-
and we're friends on Facebook, and like
-
I will to this till the day I die will
-
always. Poor daughter, Georgia,
-
whatever he does and will stand by him,
-
and whatever like he'll be invited my
-
wedding one day like everything about
-
him because he is just such a great part
-
of art. I don't even say. Like as a
-
healthcare professional. I say I was
-
like upon number of our family like he
-
truly helped my parents so much through
-
it, and then later after meeting him
-
help me through it and then we've done a
-
couple of things like this before where
-
he's I'm always willing to do lists for
-
him because it's the least I can do to
-
share my story for others because I am
-
one of the lucky ones I can sit here
-
today in Germany, three of the healthy
-
individual after the craziness that
-
happened to me and I don't think it's I
-
don't think it's my duty to keep it to
-
myself. I think it's worth sharing. It
-
should be shared. So I mean thank you
-
so much for sharing proud of what you
-
have to say about that.
-
It's It's been an honor to be artists or
-
their family or their family discussions
-
throughout the entire, or saline,
-
leading them right in the beginning,
-
you know you could tell that there was a
-
lot of love there and. seeing, you
-
know, her mom at the bedside
-
and she was looking for hope and her dad,
-
like she was saying, was looking for
-
more on, you know, what caused this,
-
how did it happen, you know, what are
-
the outcomes usually with this, it was
-
very, and
-
yeah, you really have to kind of
-
understand what each one is looking for
-
and,
-
you know, if you can provide that to
-
them and you can give it to them with,
-
you know, as much honesty as possible,
-
I think that's the most important thing
-
here, but, you know, one thing led
-
into another and Sydney is where she's
-
at now and, you know, she's a powerful
-
individual.
-
Well, thank you both so much for
-
joining. I would like to ask any final
-
words or anything else you'd like to
-
share with our listeners
-
I have a goal to write a book one day,
-
so when that happens, hopefully you all
-
will maybe read that book. Absolutely.
-
I love that. Well, thank you for
-
joining. We'll include a link to the
-
article in the show notes, but to check
-
out this or other currents content,
-
please go to
-
currentsneurocriticalcareorg. I'd love
-
to connect with anyone that I'd like to
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